ea0070aep548 | General Endocrinology | ECE2020
Webb Susan
, Kristensen Jette
, Vitali Diana
, van Klink Sandra
, van Beuzekom Charlotte
, Nordenström Anna
Introduction: An aim of the ERNs is empowering patients, by education & learning about their experiences after diagnosis of a rare endocrine disease (RED), to identify gaps and improve outcome. Thus, EndoERN Work Package 4 designed a survey, to learn about patients perceptions on quality of care and existing gaps in diagnosis/management.Aim: Evaluate results of a 21 question survey answered on-line on a Likert scale by individual patients with RED or...